Like a Surgeon

Every January I talk about how I’m going to become a better blogger. By the time February rolls around I realize that that’s a lie. I hope to change that this year. There are going to be a lot of changes. I have already started some. But first I’d like to catch you up on what’s been going on in my life.

As you know my thyroid hates me and has been plotting against me since 2012. At the end of 2015, I was taken off of the anti-thyroid medications that had been bogging me down for the previous 3 years. Not only were they cramping my style (because of like a thousand side effects), they were damaging my liver. My new Endo was like “Woah man! We need to take you off that crap like right meow.” Okay, she said it more professionally, but you get the idea. So she took me off the meds and I started seeing rainbows and cartoon birds everywhere I went. Well not really, but I was starting to feel better. I wasn’t as lethargic and I actually felt like doing things. My chronic back pain wasn’t as bad and I was able to go to the gym and work on my fitness with Fergie. Towards the end of the year, I had lost 30 pounds and I thought that it could only get better. Sike! I started feeling crappy again. My tremors were back and so was my lethargy and chronic pain. I shook my fists at the heavens and yelled “Why!?!” while rain poured on my face and dramatic music played in the background. I went back to my Endo so she could run some tests and charge me 5 million dollars. Her conclusion? I was hyperactive again. Not just a little, but super, turbo hyper active. My Graves antibodies were through the roof. They are supposed to be at 35 or lower. Mine were a little over 2,000. Yes, I used three zeros there. With this news she gave me two options: remove it with surgery or kill it with radioactive iodine. The second one seemed sketch, so I was like “yeah give me that surgery,yo.” Just kidding I don’t really talk like that, but you know what I mean. Another reason I picked the surgery was because my sister had it done lasted year and it turned out very well for her. Fast forward to today, I met with my surgeon. This was the same surgeon that my sister had, the one recommended to me by my Endo. He did an exam on my neck and said I didn’t have any nodules (which I already knew), nor did I have cancer (which I also already knew). He said that because I had neither, he didn’t think that I should get the surgery. That was a relief because I really didn’t want the surgery. That just left me with the sketch radioactive iodine. Rut row. The surgeon and I discussed it though and it actually doesn’t seem so bad. He said that there may be some side effects, but that they’d be temporary. I’d also have to get a hotel room for a few days because I couldn’t be around people. So for this treatment, I take a pill that kills my thyroid and then I get to avoid people for a few days. Sounds like a win for me. I also wont have to miss as much work as I had originally thought which is nice. A couple of downsides to not having the surgery is I won’t get to have a cool battle scar that matches my sister’s. I also won’t get to keep Lestrade (my thyroid) in a jar. Haha that would have been gross and I totally wouldn’t have done it? Now all I have to do is wait to hear from my Endo telling me when to come in and get the treatment. Hopefully soon so I can just get it over with. Well I think I’ve bored you enough for tonight. That’s pretty much all I’ve been up to. If I think of more I will make another post later. I’m also going to make some 2017 goal blog posts so look for those. For now, Adieu.

[Side note: how I named my thyroid Lestrade. Greg Lestrade from BBC Sherlock is played by Rupert Graves. I have Graves Disease that is causing my thyroid problems. Well I thought I was being funny at least.]

Thyroid & Chronic Pain Update

It’s exactly a month since I last posted. For that, I am only a little sorry. It’s because I’ve been so busy at work making it rain money!

It’s also been a while since I’ve done a thyroid update.

When I last saw my Rheumatologist, it was because my General doctor noticed my rheumatoid levels were high. The rheumatologist quickly dismissed that because “my levels were high, but not high enough to be rheumatoid arthritis”. What is the cause of my chronic pain then? He did some tests were he poked me in certain spots and asked me “does that hurt?”. After several “yes” and “no” answers, he finally said he wanted to do some “blood work”. He gave me an order to get some blood labs done at Quest. Then and left and I was charged $45. This I what I had waited an hour past my appointment time for.

I got my blood work done at Quest like I was supposed to. The rheumatologist office said I should hear from them in a few days for the results. Two weeks passed and I still hadn’t heard from them. I gave them a call and the nurse said that my results came back normal. I asked her what the doctor wanted me to do and she said he didn’t say. Thanks for the help. Not. So I didn’t have RA and I didn’t have Firbro. What now?

I decided to go back to my regular doctor. This was during December, the busy season at work, so I kind of forgot to call him for a while. When the pain got worse is when I remembered. When I did finally call, the nurse said that my doctor was going to be about for a while for neck surgery. The soonest I could get in was March 1st.

During my appointment with my doctor, I told him about what happened with the Rheumatologist. He said “there isn’t a blood test for fibromyalgia”. That’s comforting. He told me I need to go back to Dr. Stark (not Ironman unfortunately) and tell I’m still having pain and make him do something about. You mean you want me to pay $45 to tell a doctor to do the job he’s supposed to be doing? No thanks. I’ve found another rheumatologist through a client that also has Hashimotos. I’ll just get a referral to go to him. This client with Hashis was telling me about a disorder she got from a vitamin D deficiency (which I have). She said it’s called Osteomalacia. It causes pain in the bones (especially the lower back, hips, legs, and feet), the pain is worse at night, exhaustion, and weak muscles. These are all my symptoms! The doctor she is going to is Dr. Gonzales. He’s the one treating her for Osteomalacia. He has her on 50,000 iu of vitamin D and calcium. I’m going to call my doctor on Monday and get a referral for Dr. Gonzales. Hopefully he can help me too.

Thyroid Update
During my last thyroid update I told you I no longer had Graves Disease. I had an appointment with my Endo this post Monday (2/29/15). She was weaning me off my Methimozole. This visit I was supposed to get lab results back on my TSH and other T levels. The nurse said she’d send over the lab request to the Quest near me so I didn’t have to drive an hour just for blood work. I went and got my bloodwork done before my appointment like I was supposed to. When my appointment day came, I drove an hour to the office, waited 45 minutes part my appointment time, and paid $20. When I finally saw the doctor she said the wrong labs were sunny to Quest and that they didn’t have my results for my levels. That was the whole point of this visit! They took my blood for this visit and did they’d have results in a couple of days. The only reason why I’m pissed (besides the obvious) is because I’ve been off my Methimozole since February 5th and I can still feel my tremors. They’re not as bad as before I was diagnosed. But it still worries me. What if I went back to hyper and need to be on my meds again? Well idk bc I got the wrong results. I told my doctor about my tremors and she just said well I can’t know until I see the results. What if I have a thyroid storm the mean time? She also didn’t tell what to do if I’m not hyper. Am I supposed to go on Synthroid? I tried to ask but she cut me off then walked out the room. I’m thinking I need to go to another Endo again. We’ll see after they call with the results. My appointment was Monday and here it is Saturday and they haven’t called. I’ll be calling them on this Monday.

Well those are all the updates I have for now. I will post when I have more.

Highlights of 2015

Before I post my 2016 goals I thought I would list the highlights of my 2015.

January
Bought a new (used) car

February
Celebrated my first Imbolc

march
CNA job ended and got another one from Hell
Celebrated my first Ostara (with a group)

April
Started renting a salon suite

may
Celebrated my first Beltane

June
First Litha

July
my nephew turned 2

August
my sister temporarily moved back home from college
First Lughnasadh

September
First mabon

October
First Samhain

November
Reunited with a best friend after 9 years apart

December
Finally got into a new Endo
No more Grave’s
Second Yule
First time participating in a public ritual

 

 

 

 

 

Another Thyroid Update

I got some good news at my Endo appointment on Wednesday!

The Endo said that I was negative for Graves’ Disease! I don’t have it anymore. I do, however, have Hashimoto’s which I am totally okay with. I  would rather have Hashimoto’s than Graves’. It’ll be easier to manage with a diet and exercise. Plus I won’t have to have surgery! She also said that she is unsure if I ever had Graves’. Which is confusing. She said she doesn’t know for sure because she doesn’t have the initial diagnosis paper from my last Endo. I  had called them before my first appointment with my new Endo so she should have it. I guess I’m going to have to give them a call again on Monday and tell them to send it. I’m going to be pissed if my last Endo had been treating me for Graves’s and I never had it. Though my new Endo said I definitely had the Hyperthyroid, but still.

I still haven’t heard back from my Rheumatologist about my Fibro test. I’ll be giving them a call on Monday as well.

I’m still playing catch up with my posts so these are some of the posts you will be seeing this week:

Birthday

Yule 2015

Christmas 2015

New Year’s Resolutions for 2016

Year and A Day

Thyroid Update and other News

It’s been a while since my last update. I got busy at work and had a really bad sinus infection so sorry not sorry for not updating.

Instead of updating all at once, I’m going to spread them out over the next few days. Here’s my thyroid update:

Alright, last time I posted I was still waiting to get into my new Endo. I finally had my appointment with her on Monday. I really like her. She’s already 100 times better than my last one.
She kept asking me questions about what my last doctor was doing with me. I told I didn’t really know because he never talked to me or answered my questions. She said that I shouldn’t have been on Methimozole this long because it’s not good for the liver. My last Endo had had me on it for three years. Way too long (according to her).

She did a thyroid ultrasound because she thinks I might have nodules. She also did a lot of blood work. If she found nodules, I would most likely need surgery to remove the thyroid. She already said we’d talk about my options (surgery or radiation) during my next appointment which is this coming Wednesday (Dec 30th). I’m going to choose the surgery. My sister just had the surgery a couple of months ago and everything went smoothly. Though I have Graves’ worse than her and I’m a bit worried about the surgery. I’ve heard that if you have the surgery to remove your thyroid, the Graves’ just attacks other organs in your body. I’m going to ask my Endo about that during the next appointment and also do some research.

Well those are all the thyroid updates I have for now. I’ll have more after this Wednesday.

Thyroid Thursday

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I finally got in to see my General Doctor last Monday. He said my thyroid levels were still out of wack and that he thinks my Endo my be over medicating me. That’s why I have extreme fatigue. He says it looks like I might have Hypothyroidism now or that I might have Thyroiditis. He said not to quote him on all this though since he’s not an expert. He says I should go back to my Endo. I refuse to go back to my current one though because he didn’t tell me anything, then charges me $45. I have been trying to call the new one to see if I can get in before December. No such luck yet.

My General doctor also told me I had Chronic bronchitis. That accounts for my chest pain and a few other symptoms. He put me on antibiotics, an inhaler, and steroids for two weeks. I guess they’re working. It’s hard to tell because I’ve been having bad side affects from them. My doctor also wants me to see a rheumatologist about rheumatoid arthritis. He thinks that might be the cause of my bone pain.

Well those are all the thyroid updates I he for now. I’ll keep you posted as I get more.

Thyroid Thursday [10/8/25]

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I don’t have any thyroid updates yet. I had my chest x-ray on Monday so I’m just waiting for my doctor appointment next Monday to hear the results. I’ll also have the results of all my blood tests then too.

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